The Observatory Team
We are a multidisciplinary research group, drawing on expertise from medicine, public health, social sciences, and health informatics.
Professor Craig Melville
Craig is Director of the Scottish Learning Disabilities Observatory and Professor of Intellectual Disabilities, in the Institute of Health and Wellbeing at the University of Glasgow. His work focusses on using evidence from research to inform the development of interventions and policy to improve the health of people with learning disabilities. Craig has worked on clinical trials of complex interventions, such as psychological therapies, weight management and health checks in primary care. Evidence from epidemiological research has been central to the development of these clinical trials and his work with SLDO centres on how to use Scotland’s national datasets to understand and tackle the health inequalities experienced by people with learning disabilities.
Angela is the Deputy Director of the Scottish Learning Disabilities Observatory.
Before Angela started working at the Scottish Learning Disabilities Observatory she worked at the Scottish Consortium for Learning Disability. She was Head of Policy and Research. Angela has worked on lots of different learning disability projects, she is interested in how evidence is used in policy making.
Angela is involved in a lot of projects at the Observatory. These include:
- Helping to set up the SPIRE learning disabilities data project
- Analysing information about drug prescribing for people with learning disabilities
Angela believes that the Scottish Learning Disabilities Observatory can help to achieve more equality and social justice for people with learning disabilities by improving the evidence available to help policy makers and practitioners to take action to improve the health of people with learning disabilities and people with autism.
Professor Anna Cooper
Anna set up the Scottish Learning Disabilities Observatory with funding from the Scottish Government.
She wants the Observatory to make Scotland fairer and healthier for people with learning disabilities and their families, by:
- Finding out the health problems people have
- Finding out how good or bad health care is
- Telling people about health and health care problems
- Finding ways to make health and health care better
- Checking if health gets better or worse over time
- Helping the Scottish Government, and staff who provide health and social services, to get it right for people with learning disabilities
Anna is a doctor. She has done a lot of studies on the health of people with learning disabilities.
Anna’s full name is Professor Sally-Ann Cooper.
Professor Jill Pell
The Scottish Learning Disabilities Observatory is based in the Institute of Health and Wellbeing at Glasgow University; Professor Jill Pell is Director of this Institute. She is an expert in Public Health.
Jill also has another role as Honorary Consultant in Public Health in NHS Greater Glasgow and Clyde.
Jill’s main research interests are in:
- Long term conditions like diabetes
- Maternal and child health
A lot of her research draws on different administrative data and uses data linkage methods to help answer important public health questions. For example, Jill is leading research which will help to understand the different things associated with additional educational support needs.
Professor Nick Watson
Nick is Director of the Centre for Disability Research at the University of Glasgow and also of 'What Works Scotland'.
The Centre for Disability Research is one the United Kingdom’s largest research centres looking at disability. The Centre's programme of work is focused on a wide range of areas including disabled children and schools, the use of aids to daily living, growing older as a disabled person and how we can best provide support and care to disabled people.
What Works Scotland is a centre that looks at how we can change the way that the Government and Local Authorities provide services that are based on what people want and are delivered in a way that they find useful.
Nick’s main areas of research include disability hate crime, health and social care integration, Self Directed Support and Independent Living.
Nick will be supporting the development of the qualitative research programme at the Observatory. This includes looking at the impact of hate crime on the health and wellbeing of people with learning disabilities.
Dr Deborah Kinnear
Deborah is a Research Fellow at the University of Glasgow and works for the Scottish Learning Disabilities Observatory. She is interested in finding out ways to improve the health of people with learning disabilities and their families. Deborah developed this interest whilst working as a research psychologist and also whilst working with people with learning disabilities and their family members.
Deborah is currently exploring a number of areas including:
- Parent and child mental health
- Physical health of people with learning disabilities
- Oral health of people with learning disabilities
- Health of ageing carers
Deborah hopes that the information she collects will help improve quality and access to healthcare for people with learning disabilities and their family carers.
Dr Ewelina Rydzewska
Ewelina works as a Research Associate at the Scottish Learning Disabilities Observatory at the University of Glasgow. Before joining the team, she was part of Autism Network Scotland team at the University of Strathclyde where she had an opportunity to work closely with people with autism spectrum disorder, their families, practitioners, policy makers as well as researchers with particular interests in autism.
In the past Ewelina has been involved in a number of research projects on autism conducted both within academia and other sectors. In her work at the Observatory she is investigating health needs of people on the spectrum. She is currently looking at Scotland's Census data around developmental disorders.
Dr Phillippa Wiseman
Phillippa joined the team at the Scottish Learning Disabilities Observatory in February 2015. She is a sociologist and a researcher and is interested in disability and equality and this is why she wanted to contribute to the Observatory. Before she began working at the SLDO she finished her PhD at the University of Glasgow.
She has worked as a researcher on a number of projects that have looked at health and inequality for disabled people. She is also interested in the ways in which disabled people can be socially excluded and how this makes them feel.
Phillippa is currently working on a project that will look at hate crime, violence and harassment towards people with learning disabilities. She is interested in how this makes them feel and the impact that it has on their wellbeing and their everyday lives.
Laura Hughes McCormack
Laura has been a researcher working for the Scottish Learning Disabilities Observatory at the University of Glasgow since 2015.
She is involved in projects looking at the health of people with learning disabilities in a number of large data-sets, including primary health care records, Scotland's 2011 Census and health records of people born with Down Syndrome in Scotland over a 25 year period.
Laura studied Psychology and has extensive experience of working with people with learning disabilities in her previous roles, for example, as a Befriender, a Learning Assistant and an Assistant Psychologist.
Kirsty has been working in the Scottish Learning Disabilities Observatory as a research assistant since 2015 and has recently started a PhD. Her PhD will examine the mental health of fathers who care for their son or daughter with learning disabilities. This project is important as more fathers are now taking an active caregiving role and yet there is very little research in this area. We need to find out more about the mental health of father carers and their experiences of support services. This may inform service providers and policy makers about how they can better support fathers.
By conducting analysis of Scotland’s Census 2011, Kirsty will find out about father carers’ mental health and what factors are associated with poor mental health. The Census will allow her to identify the whole population of father carers in Scotland, making this study unique. Kirsty will also conduct interviews with father carers to learn more about their experiences of caring for their son or daughter with learning disabilities.
This study will increase our understanding of the mental health of father carers living in Scotland, ensuring that they can be provided with the right information and the right support, which will be beneficial not only to them but also to the care they provide for their son or daughter.
Sandra is the administrator for the Scottish Learning Disabilities Observatory and works on a Tuesday, Wednesday and Thursday. She arranges all our events and takes care of our website updates and e-newsletters.
Sandra is the first point of contact for the team and will be happy to assist you.
Gillian has joined the Observatory as a research assistant. Prior to this role, she worked as a scientist in the pharmaceuticals/medical device sector before training in public health. Previous research projects include the epidemiology of diabetes and musculoskeletal pain. She is currently working in the Observatory on a project investigating health and educational outcomes for children and young people who have learning disabilities and/or autism, including those prescribed antipsychotic drugs. Gillian previously studied biomedical sciences at the University of Aberdeen and later completed a Masters in Public Health at the University of Dundee in 2017.
For more information, please email Gillian.firstname.lastname@example.org
Rhiann is a Public Engagement Lead on a project developing an adapted citizens’ jury for people with learning disabilities, based in the Scottish Learning Disabilities Observatory. This project aims to improve the engagement of adults with learning disabilities in health research by addressing attitudinal, structural and communication barriers to engagement.
Rhiann joined the team in December 2018. Before this post, Rhiann worked on a variety of projects that aimed to understand the barriers that disabled people face when accessing health or social care services and to reduce health inequalities. In her most recent role before the Scottish Learning Disabilities Observatory, Rhiann worked for Jo’s Cervical Cancer Trust and worked to improve awareness of and access to suitable cervical screening opportunities for marginalised groups in Greater Glasgow and Clyde.
Rhiann is also an unpaid carer which is why she feels passionate about reducing health inequalities for people with learning disabilities.
Dr Maria Truesdale
Dr Maria Truesdale is a senior lecturer in intellectual disabilities at the University of Glasgow and is a recent member of the Scottish Learning Disabilities Observatory. She has longstanding experience, working in the field of learning disabilities, in health related research across the lifespan in a number of areas including childhood obesity, breast cancer, ageing, diabetes and psychological trauma. Her research interests centres on improving the health of people with intellectual disabilities through developing and delivering interventions for chronic illnesses, namely Type 2 diabetes.
Recent projects include:
- Transition from child to adult health services for people with complex learning disabilities
- The development of Best Practice Guidelines on Relationships and Sexual Education to meet the needs of children and young people with learning disabilities
Maria is currently building upon her existing research on type 2 diabetes by exploring the health needs of adults with type 2 diabetes and learning disabilities.