This project aimed to investigate general health status in young people with autism with and without learning disabilities over the transitional period, and quantify the extent to which personal characteristics, parental relationships and household income are associated with general health status.
The National Longitudinal Transitions Study-2 includes a nationally representative sample of youth receiving special education services aged 13-17 years at wave 1, followed up over 10 years in five waves of data collection. Parent-reported data identified individuals with autism and their general health status. We conducted random-effects ordered logistic regressions to determine the odds ratios (OR) with 95% confidence intervals (CI) of wave, age, sex, ethnicity, additional learning disabilities, parental/guardian relationship status and household income being associated with general health status in youth with autism.
At wave 1, data on whether young people had a record of autism were available on 9,008/9,576 (94.1%) individuals, and 1,019/9,008 (11.3%) of them had autism. Across waves, only between 74.3%-69.9% had excellent/very good health (71.7%-58.8% in those with additional learning disabilities), but wave was not associated with general health status. Associations were for age OR=1.18 (1.04, 1.33), additional learning disabilities OR=1.56 (1.00, 2.44) and household income OR=0.61 (0.40, 0.94) at $30,001-$50,000, OR=0.44 (0.27, 0.72) at $50,001-$70,000, and OR=0.34 (0.20, 0.56) at $70,001+. Sex, ethnicity, and parental/guardian relationship status were not associated with general health status.
There was little change in general health status longitudinally across the transitional period in young people with autism. However, young people with autism need health planning across this period given the low proportion with excellent/very good health, and changes from child to adult services and support provision, including consideration of their household circumstances. Lack of other longitudinal studies indicates a need for more research.
The original article for this study Rydzewska, E., Fleming, M., Mackay, D., Young-Southward, G., Blacher, J., Ross Bolourian, Y., Cooper, S. A. (2023). General health status of youth with autism with and without intellectual disabilities transitioning from special education, and its relationship to personal and family circumstances: longitudinal cohort study. International Journal of Developmental Disabilities, 69(4), 515–523. is available online via the link below
Project Lead: Ewelina Rydzewska
Team: Michael Fleming, Daniel Mackay, Genevieve Young-Southward, Jan Blacher, Yasamin Ross Bolourian, Keith Widaman, Sally-Ann Cooper
Ewelina is an Affiliate Associate Researcher with the Scottish Learning Disabilities Observatory. Ewelina's work with the Observatory focused around health inequalities and the health needs of people with autism. She is now based at the University of Edinburgh School as a Lecturer in Health Futures at the Edinburgh Futures Institute and School of Health in Social Science.
Anna set up the Scottish Learning Disabilities Observatory with funding from the Scottish Government. She wants the Observatory to make Scotland fairer and healthier for people with learning disabilities and their families, by: Finding out the health problems people have Finding out how good or bad health care is Telling people about health and health care problems Finding ways to make health and health care better Checking if health gets better or worse over time Helping the Scottish Government, and staff who provide health and social services, to get it right for people with learning disabilities Anna is a doctor. She has done a lot of studies on the health of people with learning disabilities. Anna’s full name is Professor Sally-Ann Cooper.
