Although the life expectancy of people with learning disabilities has increased in recent years, it is still considered to remain lower than that of the general population. A systematic review was undertaken in order to identify the gaps and strengths of this evidence.
The aim of this systematic review was to identify the causes of death and life expectancy of people with learning disabilities.
The review was registered with the International Prospective Register of Systematic Reviews (Prospero), registration number CRD42015020161. Five electronic databases (CINAHL, MEDLINE, PsychINFO, Web of Science, and EMBASE) were searched for key words relating to intellectual disability AND death.
Titles and abstracts were assessed using strict inclusion/exclusion criteria (5% were assessed by a second researcher). Full papers were then assessed for eligibility. Information relating to design, demographics, data source, method of analysis, findings and limitations was extracted, tabulated and reviewed using narrative analysis.
A total of 17,828 potentially relevant articles were identified from database searching. N=25 of these studies met the inclusion criteria. Analysis of these studies revealed that individuals with learning disabilities had lower life expectancy than the general population. Higher mortality rates were pronounced in specific subgroups such as females and individuals with severe/profound learning disabilities. The majority of studies were limited by the fact that they relied on administration data and did not undertake age-matched comparisons with the general population.
The studies reviewed demonstrate a lower life expectancy among the learning disability population, in comparison to the general population. Further population based and age matched cohort studies are needed in order to ascertain life expectancy of the entire learning disability population.
Project lead: Lisa O'Leary
Research team: Sally-Ann Cooper, Laura Hughes-McCormack
Project information last updated July 2020.
Anna set up the Scottish Learning Disabilities Observatory with funding from the Scottish Government. She wants the Observatory to make Scotland fairer and healthier for people with learning disabilities and their families, by: Finding out the health problems people have Finding out how good or bad health care is Telling people about health and health care problems Finding ways to make health and health care better Checking if health gets better or worse over time Helping the Scottish Government, and staff who provide health and social services, to get it right for people with learning disabilities Anna is a doctor. She has done a lot of studies on the health of people with learning disabilities. Anna’s full name is Professor Sally-Ann Cooper.
Laura is a Lecturer in Clinical Psychology at the University of Glasgow, and an affiliate of the Scottish Learning Disabilities Observatory, having joined the team in 2015. With the Observatory, Laura was involved in projects looking at the health of people with learning disabilities in a number of large data-sets, including primary health care records, Scotland's 2011 Census and health records of people born with Down Syndrome in Scotland over a 25 year period. Laura studied Psychology and has extensive experience of working with people with learning disabilities in her previous roles, for example, as a Befriender, a Learning Assistant and an Assistant Psychologist. Read more about Laura at the link below
